About Us

Pectus Matters is a registered charity that supports and advocates for patients in the UK with pectus conditions.

Our Mission

Pectus Matters exists to improve the lives of people affected by pectus conditions. We work to advance access to high-quality care by providing trusted information, advocating for accessible healthcare services, raising awareness, and fostering a supportive community. Through collaboration with patients, healthcare professionals, and partner organisations, we aim to ensure that everyone affected by pectus conditions has access to the knowledge, support, and care they need

What we do

An icon of two hands shaking, representing a handshake or agreement.

Support

Support pectus patients and their families to access the best quality care.

A person sitting at a desk using a laptop

Advocate

Advocate for best practice and accessible treatment for pectus patients.

Icon with four arrows pointing outward toward each corner and a small circle in the center

Inform

Act as a source of information and advice on pectus and related conditions.

Black and white icon of a person with raised arms inside a circle, surrounded by smaller icons of people with open arms.

Collaborate

Collaborate constructively with associated organisations

Our Trustees

  • An elderly man with glasses smiling, wearing a colorful shirt with musical instrument patterns, against a plain light-colored background.

    Barry Nichols (FCA)

  • A young man with short dark hair and glasses took a selfie against a plain white wall background. He is wearing navy scrubs with a logo that says Queen's University Unversity and St. Mary's on the chest.

    Bazil Shahzad

  • Close-up of a woman with blonde hair, glasses, and a colorful necklace, smiling and touching her chest.

    Carol Cliffe

  • A woman with long brown hair wearing black-rimmed glasses and a black top, standing against a plain light-colored wall.

    Ellie Musgrave

  • A young woman with long, wavy, reddish-brown hair wearing a black tank top, standing against a plain white wall.

    Ellie Shepherd

  • A woman with short gray hair wearing tortoiseshell glasses and an olive green t-shirt standing against a plain light gray background.

    Kate Chauhan

  • A woman with short brown hair, blue eyes, and light skin, smiling slightly, wearing a green shirt with an infinity symbol necklace, against a plain white background.

    Lynne Evans

  • Man in suit with a medal around his neck, standing in front of a backdrop with a repeating logo featuring a stylized snake wrapped around a staff with a flame on top.

    Simon Kendall (FRCS C/Th)

Our Volunteers

Pectus Matters is supported by a dedicated community of volunteers from across the UK. 

Our volunteer team is made up of pectus patients, parents and family members, and clinicians and consultants. As a team, we work to bring together our diverse array of skills from a variety of backgrounds. So far, the generosity and dedication of our volunteers has helped us to support patients and influence the national agenda for pectus care in the UK.

Pectus Matters is looking for volunteers to help across the organisation. If you are interested in volunteering with us, we would love to hear from you and learn more about your skills and interests.

To learn more about volunteering opportunities within Pectus Matters, please contact us.

Multiple people placing their hands together in a show of teamwork or unity.
Multiple people placing their hands together in a show of teamwork or unity.

Our Collaborators

NHS England logo with blue background and white letters for NHS, and black text for England.
NHS England logo with blue background and white letters for NHS, and black text for England.
Logo of NHS Scotland's National Services with blue text and wave design
Logo of NHS Scotland's National Services with blue text and wave design
Healthcare Improvement Scotland logo with a blue abstract knot design and blue and black text.
Logo for the American Association of Physicists in Medicine, featuring a shield, a caduceus with a blue rod, and the acronym 'BAPO'.
Logo for the American Association of Physicists in Medicine, featuring a shield, a caduceus with a blue rod, and the acronym 'BAPO'.
Logo of the American Academy of Pediatrics with the abbreviation 'BAPS'
Logo of the American Academy of Pediatrics with the abbreviation 'BAPS'
MedicAlert logo featuring a red eye-shaped background with a white medical caduceus and the words 'Medical Alert' and 'A Registered Charity' below.
MedicAlert logo featuring a red eye-shaped background with a white medical caduceus and the words 'Medical Alert' and 'A Registered Charity' below.
Logo of the Chest Wall International Group (CWIG), featuring a stylized ribcage and the text 'Chest Wall International Group 2009'.
Logo of the Chest Wall International Group (CWIG), featuring a stylized ribcage and the text 'Chest Wall International Group 2009'.
Logo of the Society for Cardiothoracic Surgery showing a stylized yellow torch with a snake wrapped around it, on a red oval background, with the organization name and description in black text.
Logo of PECTUS Support Network UK with three colorful hands reaching toward a stylized spine, tagline 'Paying it forward,' and the words 'Connection - Education - Collaboration.'

Our Corporate Partners