Patient Support
Post-op support pack
Are you a UK resident who has just had pectus surgery?
Are you due to have pectus surgery in the next few months?
Apply today to receive our post-op pack, complete with tailor-made resources, a medical ID bracelet, and one-year subscription to the MedicAlert first responder service.
Pectus Support Network UK
Living with a pectus condition, or caring for a child with a pectus condition, can be very overwhelming and emotionally difficult. Pectus Support Network UK is an independent support group, aiming to create a supportive national network of individuals with lived experience. They can offer peer support, understanding, and a sense of community.
Follow them on Facebook or contact them by email at pectusnetworkuk@gmail.com
Pectus & Me ebook
Written by trustee and founding member Lynne Evans, Pectus & Me shares the stories of fourty-one patients living with pectus conditions in the UK.
The patient stories contained within give an honest account at the experiences of patients and their families, as they try to access treatment. This includes accounts from patients struggling to access care, as well as those whose lives have been changed by having pectus surgery.
Read Pectus & Me online, here.
If you’d be interested in featuring your patient story on our website, please email us at info@pectusmatters.co.uk
